Better Tools for Multi-site Research

From the Examining Community-Institutional Partnerships for Prevention Research Group. The curriculum is intended as a tool for use by community-academic partnerships that are using or planning to use a Community-based Participatory Research (CBPR) approach to improving health. It can be used by partnerships that are just forming as well as existing partnerships. It is intended for use by health professions faculty and researchers, students and post-doctoral fellows, staff of community-based organizations, and staff of public health agencies at all skill levels.  

The Examining Community-Institutional Partnerships for Prevention Research Group. Developing and Sustaining Community-Based Participatory Research Partnerships: A Skill-Building Curriculum. 2006.   http://www.cbprcurriculum.info/

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This toolkit is designed for community-based participatory research partners who want to create or change policies that affect health in their communities.

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From Community-Campus Partnerships for Health. http://depts.washington.edu/ccph/pdf_files//Ritas.pdf

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This thoughtfully constructed resource was developed to help facilitate the formation of ethical, enduring, collaborative and beneficial research relationship between communities and a University. Written on the belief that implementation of the principles outlined will allow for partnerships that reflect mutual respect and cooperation, this document is an excellent example for any one looking to form a new community-academic partnership or strengthen an existing one.  Click here to download.

Courtesy of the Yale Center for Clinical Investigation's Community Alliance for Research and Engagement (CARE).  http://ycci.yale.edu/community/care_main.html

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Education Network To Advance Cancer Clinical Trials (ENACCT) provides a set of free, web-based, one hour e-learning courses for patient advocates and community leaders, as well as primary care providers to learn about promoting and discussing all treatment options, including clinical trials, for individuals diagnosed with cancer. Participants learn about the risks, benefits, and barriers to cancer clinical trials participation. A course for cancer clinical trial staff teaches how to promote greater access to and participation in cancer clinical trials, especially for minorities and the medically underserved. It emphasizes cultural competence within the clinical research setting. The principles taught in these courses may be relevant to all clinical trials, not only cancer-related trials.   

From the Education Network To Advance Cancer Clinical Trials (ENACCT).  www.enacct.org/training-programs/healthcare-provider-training

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The Research Initiative Working Group (RIWG) of Lawrence, Massachusetts developed this set of core principles for research partnerships and list of questions to help guide community-based research partnerships toward best practice. These could serve as a building block for others seeking a 'partnership approach' to research between investigators, community organizations and local government.

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Lawrence Research Initiative working group of Mayor's Health Task Force of Lawrence, MA. http://lawrencemhtf.org/groups/index.php?group=riwg

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The Research Initiative Working Group (RIWG) of Lawrence, Massachusetts developed this plain english glossary of research terms that non-researchers may find useful in understanding terms heard when interacting with researchers or reading their proposals.

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Lawrence Research Initiative working group of Mayor's Health Task Force of Lawrence, MA. http://lawrencemhtf.org/groups/index.php?group=riwg

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The Research Initiative Working Group (RIWG) developed The Working Together model to help guide community-based participatory research in Lawrence, Massachusetts. This diagram depicts the flow of activities in building research partnerships where shared and equal decision making are the goals and where the findings are brought back into the community to create change and improve community conditions.

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Lawrence Research Initiative working group of Mayor's Health Task Force of Lawrence, MA. http://lawrencemhtf.org/groups/index.php?group=riwg

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This interactive curriculum was developed to prepare and inform community representatives about the importance of research ethics so as to give them a stronger voice before, during, and after the research process. This curriculum covers general principles of research ethics that are shared by geographic, cultural, economic, legal, and political groups around the world. The curriculum content is divided into 2 parts, each containing 3 sections. Part A: Community Participation in the Research Process; Researchers and Sponsors; Ethics Committees. Part B: Principles of Research Ethics; Informed Consent; Research Ethics Documents.   Click here to download.

From Family Health International.   http://www.fhi.org/en/RH/Training/trainmat/ethicscurr/RETCCREn/index.htm

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Although this outstanding guide focuses specifically on girls’ and women’s health, gender and health related issues - it can help new researchers connect with the overall Community-Based Practice approach. The guide is rooted in the experiences and practices of community researchers, with content structured around a series of cross-disciplinary conversations.   Click here to download.

From the Women's Health Research Network (WHRN).  http://www.whrn.ca/our-common-ground.php

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This article presents the design and conceptual foundations for a year-long community based participatory research (CBPR) education and training program in which community based organization (CBO) teams learn research design, discuss CBPR principles, design and implement a community health-related research project tailored to their program and community, conduct analysis, and initiate integration of the results into the organization and community.

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May M and Law J. CBPR as Community Health Intervention: Instititutionalizing CBRP Within Community Based Organizations. Progress in Community Health Partnerships: Research Education and Action. Summer 2008; vol 2.2.   http://muse.jhu.edu

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Organized in a question-and-answer format, this  excellent resource describes the conceptual framework for, and processes and steps involved in developing community-engaged research collaborations or partnerships with community- and practice-based clinicians. It includes resources to facilitate this work and address some of the barriers to collaboration. A shorter version of this guide is also available for download on UCSF's CTSI website.   Click here to download.

Courtesy of the University of California San Francisco (UCSF) Clinical and Translational Science Institute (CTSI) Community Engagement Program.  http://ctsi.ucsf.edu/research/community-manuals

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Organized in a question-and-answer format, this excellent resource describes the conceptual framework for, and processes and steps involved in developing community-engaged research collaborations or partnerships with community-based organizations and agencies. It includes resources to facilitate this work and address some of the barriers to collaboration. A shorter version of this guide is also available for download on UCSF's CTSI website.   Click here to download.

Courtesy of the University of California San Francisco (UCSF) Clinical and Translational Science Institute (CTSI) Community Engagement Program.  http://ctsi.ucsf.edu/research/community-manuals

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This video, available through CTN Best Practices, introduces terminology and answers questions frequently asked by patients about clinical research studies. Available in formats for those with both high and low speed internet connections.  

From Clinical Trials Networks Best Practices (CTNBP) of Duke Clinical Research Institute (DCRI).  https://www.ctnbestpractices.org/edu/whatisastudy/

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