Better Tools for Multi-site Research

This article presents the design and conceptual foundations for a year-long community based participatory research (CBPR) education and training program in which community based organization (CBO) teams learn research design, discuss CBPR principles, design and implement a community health-related research project tailored to their program and community, conduct analysis, and initiate integration of the results into the organization and community.

Click here to download.

May M and Law J. CBPR as Community Health Intervention: Instititutionalizing CBRP Within Community Based Organizations. Progress in Community Health Partnerships: Research Education and Action. Summer 2008; vol 2.2.   http://muse.jhu.edu

Back to Top

The Research Initiative Working Group (RIWG) of Lawrence, Massachusetts developed this plain english glossary of research terms that non-researchers may find useful in understanding terms heard when interacting with researchers or reading their proposals.

Click here to download

Lawrence Research Initiative working group of Mayor's Health Task Force of Lawrence, MA. http://lawrencemhtf.org/groups/index.php?group=riwg

Back to Top

The Research Initiative Working Group (RIWG) developed The Working Together model to help guide community-based participatory research in Lawrence, Massachusetts. This diagram depicts the flow of activities in building research partnerships where shared and equal decision making are the goals and where the findings are brought back into the community to create change and improve community conditions.

Click here to download

Lawrence Research Initiative working group of Mayor's Health Task Force of Lawrence, MA. http://lawrencemhtf.org/groups/index.php?group=riwg

Back to Top

Ensuring that health care (and health research with diverse populations) is culturally and linguistically appropriate is anything but automatic. The Cross Cultural Health Program offers training, consultation, and resource guides that help health care providers and researchers meet the needs of diverse populations and address health disparities.   

From the Cross Cultural (CC) Health Care Program's Cultural Competency Training Program.  http://www.xculture.org/cctrainingprograms.php

Back to Top

From the Examining Community-Institutional Partnerships for Prevention Research Group. The curriculum is intended as a tool for use by community-academic partnerships that are using or planning to use a Community-based Participatory Research (CBPR) approach to improving health. It can be used by partnerships that are just forming as well as existing partnerships. It is intended for use by health professions faculty and researchers, students and post-doctoral fellows, staff of community-based organizations, and staff of public health agencies at all skill levels.  

The Examining Community-Institutional Partnerships for Prevention Research Group. Developing and Sustaining Community-Based Participatory Research Partnerships: A Skill-Building Curriculum. 2006.   http://www.cbprcurriculum.info/

Back to Top

Web site with many resource links allowing exploration of and training for cultural awareness in health care, including tools for teaching cultural competencies, patient information resources, topic-relevant professional associations and book titles, links to journals focused on cultural diversity and health care, and more.

From Dartmouth College Library. http://libguides.dartmouth.edu/content.php?pid=45470

Back to Top

This comprehensive report outlines 58 recommendations that center around seven broad themes. These recommendations help define the involvement of communities in the development and implementation of phase III cancer clinical trials. The report details these recommendations with a full rationale, as well as an extensive appendix, with strategies and resources for implementation.  Click here to download.

Organized in a question-and-answer format, this excellent resource describes the conceptual framework for, and processes and steps involved in developing community-engaged research collaborations or partnerships with community- and practice-based clinicians. It includes resources to facilitate this work and address some of the barriers to collaboration. A shorter version of this guide is also available for download on UCSF's CTSI website.   Click here to download.

Courtesy of the University of California San Francisco (UCSF) Clinical and Translational Science Institute (CTSI) Community Engagement Program.  http://ctsi.ucsf.edu/research/community-manuals

Back to Top

Organized in a question-and-answer format, this excellent resource describes the conceptual framework for, and processes and steps involved in developing community-engaged research collaborations or partnerships with community-based organizations and agencies. It includes resources to facilitate this work and address some of the barriers to collaboration. A shorter version of this guide is also available for download on UCSF's CTSI website.   Click here to download.

Courtesy of the University of California San Francisco (UCSF) Clinical and Translational Science Institute (CTSI) Community Engagement Program.  http://ctsi.ucsf.edu/research/community-manuals

Back to Top

The Research Initiative Working Group (RIWG) of Lawrence, Massachusetts developed this set of core principles for research partnerships and list of questions to help guide community-based research partnerships toward best practice. These could serve as a building block for others seeking a 'partnership approach' to research between investigators, community organizations and local government.

Click here to download

Lawrence Research Initiative working group of Mayor's Health Task Force of Lawrence, MA. http://lawrencemhtf.org/groups/index.php?group=riwg

Back to Top

CTN Best Practices offers researchers tools to help select clinical sites for research. For example, a checklist outlining minimum requirements for facilities and dedicated/non-dedicated staff, space, equipment, and education and training required for a clinical study. Also included is a site survey for gathering information to provide a sponsor/ARO/CRO before site selection and a presentation for study coordinators entitled, What Makes a Top Ten Site: An ARO Perspective.  

From Clinical Trials Networks Best Practices (CTNBP) of Duke Clinical Research Institute (DCRI). Presented by the Duke Clinical Research Institute Statistics group and CTN Best Practices principal investigator, Robert A. Harrington, MD.  https://www.ctnbestpractices.org/sites/site-selection

Back to Top

This manuscript describes survey findings relating to barriers to physician participation in cancer control trials among oncologists, oncology leaders, and health plan leaders. Predictors of participation, essential infrastructure and support needs, and other important factors are discussed.  Click here to download.

Somkin CP, Altschuler A, Ackerson L, Geiger AM, Greene SM, Mouchawar J, Holup J, Fehrenbacher L, Nelson A, Glass A, Polikoff J, Tishler S, Schmidt C, Field T, Wagner E. Organizational Barriers to Physician Participation in Cancer Clinical Trials. American Journal of Managed Care. 2005 11(7): 413 - 421.  http://www.ajmc.com/media/pdf/AJMC05julSomkin413to421.pdf

Back to Top